---
title: "Four Adult Primary Ciliary Dyskinesia (PCD) Centres - Market Engagement Exercise"
ocid: "ocds-b5fd17-0dd7ab3b-8968-4ae1-af4c-f177e1ee22db"
canonical_url: "https://d3tenders.com/contract/?ocid=ocds-b5fd17-0dd7ab3b-8968-4ae1-af4c-f177e1ee22db"
markdown_url: "https://d3tenders.com/contract/ocds-b5fd17-0dd7ab3b-8968-4ae1-af4c-f177e1ee22db.md"
json_url: "https://d3tenders.com/contract/ocds-b5fd17-0dd7ab3b-8968-4ae1-af4c-f177e1ee22db.json"
source: "Contracts Finder"
current_stage: "Planning"
buyer: "NHS ARDEN AND GREATER EAST MIDLANDS COMMISSIONING SUPPORT UNIT"
published: "2023-07-19"
---

# Four Adult Primary Ciliary Dyskinesia (PCD) Centres - Market Engagement Exercise

Buyer: NHS ARDEN AND GREATER EAST MIDLANDS COMMISSIONING SUPPORT UNIT  
Current stage: Planning  
OCID: ocds-b5fd17-0dd7ab3b-8968-4ae1-af4c-f177e1ee22db

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## Summary

The NHS Arden and Greater East Midlands Commissioning Support Unit is conducting a market engagement exercise titled "Four Adult Primary Ciliary Dyskinesia (PCD) Centres" aimed at understanding the capacity and capability of potential service providers in the health services sector. The exercise is not a call for competition but an opportunity for providers to engage and showcase their ability to deliver services related to the management of Primary Ciliary Dyskinesia. Interested parties must register by 18th August 2023 to participate.

This market engagement exercise presents an opportunity for service providers specialising in managing Primary Ciliary Dyskinesia to engage with the NHS to potentially secure a contract lasting 3 years, with the option to extend for an additional year. The service is expected to commence in 2023/24 and aims to improve patient care standards for individuals diagnosed with PCD over the age of 16 years. Providers must ensure they can meet the specified requirements before registering their interest.

## Notice

NHS Arden and Greater East Midlands Commissioning Support Unit (AGCSU), on behalf of NHS England Specialised Commissioning (referred to as the Commissioner), is undertaking a market engagement exercise to understand the current and future capacity and capability of the incumbent and potential providers within this highly specialised area. Please note that this is not a call for competition although the commissioner would encourage all potential providers to respond to this market engagement exercise. The outcome of this market engagement will help inform commissioners of the current and future capacity and capability of the market and will be considered to inform the commissioning approach. Interested parties are encouraged to register their interest only if they are able to deliver the full list of the requirements. Participation to this market engagement will close at 12 noon 18th August 2023. Additional information: Primary ciliary dyskinesia (PCD) is a rare (estimated between 1:26000 - 1:40000) genetic condition in which the microscopic cells in the respiratory system called cilia do not function normally. Ciliary dysfunction prevents the clearance of mucous from the lungs, paranasal sinuses and ears. Primary ciliary dyskinesia management services include services provided by Highly Specialist Primary Ciliary Dyskinesia Management centres including outreach when delivered as part of a provider network. The core objective of this service is to ensure that all patients with PCD have access to the optimal standards of care to enable a reduction in the morbidity and mortality associated with the condition. This service is for all patients with a diagnosis of PCD over the age of 16 years. Please see the link to the service specification: https://www.england.nhs.uk/wp-content/uploads/2018/06/service-specification-adult-primary-ciliary-dyskinesia.pdf The service expected to commence in 2023/24. The anticipated contract duration for this service is 3 years, with an option to extend the contract up to a further 12-month period at the Commissioner's discretion. This notice is to advise prospective providers in the market of the commissioner's intention to commission this service and to provide an opportunity to engage with and participate in a market engagement questionnaire. It is possible that as a result of this exercise, a formal tender process will not be required but instead a simpler provider selection process will be undertaken. Where it is noted that competition is absent for a particular lot, the Commissioner reserves the right to direct award to provider(s) with no further competition. All providers will be notified of next steps following the conclusion of this market engagement exercise. Documentation relating to this exercise including a questionnaire is available through the Atamis (Health Family) portal. To register your interest and access the questionnaire, please follow this link to the Atamis (Health Family) portal: https://health-family.force.com/s/Welcome. The project reference is C172414 and the closing date for submission of the completed questionnaire is: 12 noon 18th August 2023.

## Key Details

| Field | Value |
| --- | --- |
| Publication source | Contracts Finder |
| Latest notice | https://www.contractsfinder.service.gov.uk/Notice/de93703a-f43b-4806-92b4-238f0a04f38e |
| Notice type | Market Engagement Notice |
| Procurement type | Standard |
| Procurement category | Services |
| Procurement method | Not Specified |
| Procurement method details | Not specified |
| Tender suitability | Not specified |
| Awardee scale | Not specified |
| All stages | Planning |

## Dates

| Field | Value |
| --- | --- |
| Publication date | 19 Jul 2023 |
| Submission deadline | Not specified |
| Future notice date | 18 Aug 2023 |
| Award date | Not specified |
| Contract period | Not specified |
| Recurrence | Not specified |

## Values

| Field | Value |
| --- | --- |
| Tender value | Not specified |
| Lots value | Not specified |
| Awards value | Not specified |
| Contracts value | Not specified |

## Status

| Field | Value |
| --- | --- |
| Tender status | Planning |
| Lots status | Not specified |
| Awards status | Not specified |
| Contracts status | Not specified |

## Buyer

| Field | Value |
| --- | --- |
| Main buyer | NHS ARDEN AND GREATER EAST MIDLANDS COMMISSIONING SUPPORT UNIT |
| Locality | NORTHAMPTON |
| Post town | Northampton |
| Postcode | NN3 6BJ |
| Country | England |
| ITL 1 | TLF East Midlands (England) |
| ITL 2 | TLF2 Leicestershire, Rutland and Northamptonshire |
| ITL 3 | TLF24 West Northamptonshire |
| Local authority | West Northamptonshire |
| Electoral ward | Boothville and Parklands |
| Westminster constituency | Northampton North |
| Delivery location | TLC North East (England), TLD North West (England), TLE Yorkshire and The Humber, TLF East Midlands (England), TLG West Midlands (England), TLH East (England), TLJ South East (England), TLK South West (England) |

## CPV Codes

### Divisions

- 85 - Health and social work services

### Codes

- 85100000 - Health services

## Release History

- 19 Jul 2023 at 10:06 - Planning - Market Engagement Notice - https://www.contractsfinder.service.gov.uk/Notice/de93703a-f43b-4806-92b4-238f0a04f38e
- 19 Jul 2023 at 10:06 - Planning - Market Engagement Notice - https://www.contractsfinder.service.gov.uk/Notice/744d58e7-01c0-4680-8d0c-ac7b132425ce

## Documents

- https://www.contractsfinder.service.gov.uk/Notice/de93703a-f43b-4806-92b4-238f0a04f38e
  19th July 2023 - Early engagement notice on Contracts Finder
- https://www.contractsfinder.service.gov.uk/Notice/744d58e7-01c0-4680-8d0c-ac7b132425ce
  19th July 2023 - Early engagement notice on Contracts Finder

## Notice URLs

- https://health-family.force.com/s/Welcome
- https://www.england.nhs.uk/wp-content/uploads/2018/06/service-specification-adult-primary-ciliary-dyskinesia.pdf

## Provenance

This Markdown file is an alternate public rendering of the D3 Tenders contract record. The canonical page is https://d3tenders.com/contract/?ocid=ocds-b5fd17-0dd7ab3b-8968-4ae1-af4c-f177e1ee22db. The underlying structured data is available as OCDS JSON at https://d3tenders.com/contract/ocds-b5fd17-0dd7ab3b-8968-4ae1-af4c-f177e1ee22db.json.
