---
title: "Adult Primary Ciliary Dyskinesia Management Service (PCD) - Four Centres"
ocid: "ocds-b5fd17-2e1de36e-a203-4b19-90b2-07393fa89204"
canonical_url: "https://d3tenders.com/contract/?ocid=ocds-b5fd17-2e1de36e-a203-4b19-90b2-07393fa89204"
markdown_url: "https://d3tenders.com/contract/ocds-b5fd17-2e1de36e-a203-4b19-90b2-07393fa89204.md"
json_url: "https://d3tenders.com/contract/ocds-b5fd17-2e1de36e-a203-4b19-90b2-07393fa89204.json"
source: "Contracts Finder"
current_stage: "Tender"
buyer: "NHS ARDEN AND GREATER EAST MIDLANDS COMMISSIONING SUPPORT UNIT"
published: "2019-04-17"
---

# Adult Primary Ciliary Dyskinesia Management Service (PCD) - Four Centres

Buyer: NHS ARDEN AND GREATER EAST MIDLANDS COMMISSIONING SUPPORT UNIT  
Current stage: Tender  
OCID: ocds-b5fd17-2e1de36e-a203-4b19-90b2-07393fa89204

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## Summary

The NHS Arden and Greater East Midlands Commissioning Support Unit is currently conducting a tender for the "Adult Primary Ciliary Dyskinesia Management Service (PCD) - Four Centres." This procurement falls under the health and social work services industry category and is focused on enhancing patient care for those suffering from Primary Ciliary Dyskinesia. The tender period will close on 20 May 2019, with the contract expected to commence on 1 November 2019 and run until 31 October 2023. The service will be provided across various locations in the United Kingdom, including regions such as London, the East Midlands, and Yorkshire and the Humber.

This tender presents significant opportunities for healthcare providers specialising in respiratory care and management services for rare genetic conditions. Businesses with expertise in delivering specialised healthcare solutions, including those with experience in network collaboration for patient outreach, would be well-suited to compete for this contract. By participating in this tender, organisations have the potential to make impactful contributions to patient outcomes while also expanding their market presence within the public health sector.

## Notice

The Service Specification for Primary Ciliary Dyskinesia management service (adults) has been developed to support improvement in services for patients with Primary Ciliary Dyskinesia which is genetic condition in which the microscopic cells in the respiratory system called cilia do not function normally. Ciliary dysfunction prevents the clearance of mucous from the lungs, paranasal sinuses and ears. Recurring respiratory infections can lead to an irreversible scarring and obstruction in the bronchi (bronchiectasis) and severe lung damage. Cilia are also present in the ventricles of the brain and in the reproductive system so ciliary dysfunction can also affect other body systems. The service model is described in the Service Specification 1637 for Primary Ciliary Dyskinesia management service (adults) approved by NHS England and published on the NHS England website https://www.england.nhs.uk/publication/adult-primary-ciliary-dyskinesia-service-specification/. This service is provided by Highly Specialist Primary Ciliary Dyskinesia Management centres proving expert management advice to patients including outreach when delivered as part of a provider network. This provision applies to adults. Some patients will transition into the service from the paediatric HSS PCD service. Primary Ciliary Dyskinesia (PCD) is a rare hereditary disorder of ciliary dysfunction leading to multisystem abnormalities which include chronic respiratory, sinus and ear infections, cardiac abnormalities, infertility and ectopic pregnancies. Specialised care is important for this group of patients and has a direct impact on disease progression, morbidity and mortality. Appropriate management of this patient group has been demonstrated to reduce disease progression and should therefore reduce premature death and enhance the quality of life for patients with PCD. The procurement will be split into four lots ((North, Midlands and East, South and London).

## Key Details

| Field | Value |
| --- | --- |
| Publication source | Contracts Finder |
| Latest notice | https://www.contractsfinder.service.gov.uk/Notice/91cdf2f6-5773-4061-b3a8-57b1130da816 |
| Notice type | Tender Notice |
| Procurement type | Standard |
| Procurement category | Services |
| Procurement method | Not Specified |
| Procurement method details | Other - |
| Tender suitability | Not specified |
| Awardee scale | Not specified |
| All stages | Tender |

## Dates

| Field | Value |
| --- | --- |
| Publication date | 17 Apr 2019 |
| Submission deadline | 20 May 2019 |
| Future notice date | Not specified |
| Award date | Not specified |
| Contract period | 1 Nov 2019 - 31 Oct 2023 |
| Recurrence | Not specified |

## Values

| Field | Value |
| --- | --- |
| Tender value | Not specified |
| Lots value | Not specified |
| Awards value | Not specified |
| Contracts value | Not specified |

## Status

| Field | Value |
| --- | --- |
| Tender status | Active |
| Lots status | Not specified |
| Awards status | Not specified |
| Contracts status | Not specified |

## Buyer

| Field | Value |
| --- | --- |
| Main buyer | NHS ARDEN AND GREATER EAST MIDLANDS COMMISSIONING SUPPORT UNIT |
| Locality | LONDON |
| Post town | South East London |
| Postcode | SE1 6LH |
| Country | England |
| ITL 1 | TLI London |
| ITL 2 | TLI4 Inner London - East |
| ITL 3 | TLI44 Lewisham and Southwark |
| Local authority | Southwark |
| Electoral ward | St George's |
| Westminster constituency | Bermondsey and Old Southwark |
| Delivery location | TLC North East (England), TLD North West (England), TLE Yorkshire and The Humber, TLF East Midlands (England), TLG West Midlands (England), TLI London, TLJ South East (England), TLK South West (England) |

## CPV Codes

### Divisions

- 85 - Health and social work services

### Codes

- 85000000 - Health and social work services
- 85100000 - Health services

## Release History

- 17 Apr 2019 at 07:31 - Tender - Tender Notice - https://www.contractsfinder.service.gov.uk/Notice/91cdf2f6-5773-4061-b3a8-57b1130da816

## Documents

- https://www.contractsfinder.service.gov.uk/Notice/91cdf2f6-5773-4061-b3a8-57b1130da816
  17th April 2019 - Opportunity notice on Contracts Finder
- https://uk.eu-supply.com/app/rfq/rwlentrance_s.asp?PID=28099&B=OGC
  To apply please visit https://uk.eu-supply.com/login.asp?B=UK Quote/tender 35232 - NHS England Spec. Commissioning - Adult Primary Ciliary Dyskinesia Management Service (PCD) - Four Centres (4 LOTS).
- https://uk.eu-supply.com/ctm/Company/CompanyInformation/Index/68205
  EU Supply Helpdesk Tel.: 0800 840 2050, during office hours only (08:00 to 17:00). Emails can be sent to uksupport@eu-supply.com at any time but responses will only be sent between 08:00 and 17:00 weekdays.

## Notice URLs

- https://uk.eu-supply.com/login.asp?B=UK
- https://www.ardengemcsu.nhs.uk/
- https://www.england.nhs.uk/publication/adult-primary-ciliary-dyskinesia-service-specification/

## Provenance

This Markdown file is an alternate public rendering of the D3 Tenders contract record. The canonical page is https://d3tenders.com/contract/?ocid=ocds-b5fd17-2e1de36e-a203-4b19-90b2-07393fa89204. The underlying structured data is available as OCDS JSON at https://d3tenders.com/contract/ocds-b5fd17-2e1de36e-a203-4b19-90b2-07393fa89204.json.