---
title: "Clinical Registry Services for Cystic Fibrosis"
ocid: "ocds-b5fd17-3cf2f276-438e-4a5b-b072-1250f1ecdd7b"
canonical_url: "https://d3tenders.com/contract/?ocid=ocds-b5fd17-3cf2f276-438e-4a5b-b072-1250f1ecdd7b"
markdown_url: "https://d3tenders.com/contract/ocds-b5fd17-3cf2f276-438e-4a5b-b072-1250f1ecdd7b.md"
json_url: "https://d3tenders.com/contract/ocds-b5fd17-3cf2f276-438e-4a5b-b072-1250f1ecdd7b.json"
source: "Contracts Finder"
current_stage: "Award"
buyer: "NHS ENGLAND"
published: "2026-03-13"
---

# Clinical Registry Services for Cystic Fibrosis

Buyer: NHS ENGLAND  
Current stage: Award  
OCID: ocds-b5fd17-3cf2f276-438e-4a5b-b072-1250f1ecdd7b

[View canonical contract page](https://d3tenders.com/contract/?ocid=ocds-b5fd17-3cf2f276-438e-4a5b-b072-1250f1ecdd7b)  
[Download OCDS JSON](https://d3tenders.com/contract/ocds-b5fd17-3cf2f276-438e-4a5b-b072-1250f1ecdd7b.json)

## Summary

NHS England has executed a procurement process for "Clinical Registry Services for Cystic Fibrosis", focusing within the industry category of database services. The award was finalised on 9 March 2026, with a contract period from 1 October 2024 to 31 March 2026. The procurement method was conducted as a negotiated procedure without prior publication, signifying a limited procurement approach aimed at ensuring high compliance with research ethics, data protection legislation, and patient consent requirements. This contract, valued at £131,793.5 GBP, will involve delivery within England, United Kingdom, specifically catering to the specialised commissioning hub requirements.

This tender presents substantial business growth opportunities for organisations proficient in healthcare data services and registry maintenance, particularly those with capabilities to meet ad hoc data requests for audit and service evaluation purposes. Businesses experienced in database services are ideal candidates for servicing such specialised contracts, although SMEs and VCSE organisations were deemed unsuitable for this particular opportunity. Collaboration with NHS England and adherence to specific deadlines and compliance regulations can bolster an organisation's reputation and market position in the health services sector.

## Notice

To provide to Authority annual year of care banding information derived from the Registry, which will include a breakdown by Authority Specialised Commissioning Hub. To provide at the request of Authority on an ad hoc basis such aggregated data as is available in the Registry for the purposes of audit and service evaluation, subject to the following: * Compliance with Research Ethics approvals, the Data Protection Legislation and the terms of any patient consent relied on. * That Authority will make every effort to provide the maximum possible notice of such requests. * That, on receipt of an ad hoc request, the Supplier will provide an estimated delivery date. The Supplier will aim to complete requests within 10 working days. This period may have to be extended subject to the complexity of the request, and concomitant work streams. * That the Supplier will make all reasonable efforts to comply with specific deadlines set by Authority * Any data requests for Research purposes are subject to approval by the Registry Research Committee (a sub-group of the Registry Steering Committee).

## Key Details

| Field | Value |
| --- | --- |
| Publication source | Contracts Finder |
| Latest notice | https://www.contractsfinder.service.gov.uk/Notice/19975c0a-f5aa-4a5a-b10f-ded8d9ed19aa |
| Notice type | Award Notice |
| Procurement type | Standard |
| Procurement category | Services |
| Procurement method | Limited |
| Procurement method details | Negotiated procedure without prior publication (above threshold) |
| Tender suitability | Not specified |
| Awardee scale | SME |
| All stages | Award |

## Dates

| Field | Value |
| --- | --- |
| Publication date | 13 Mar 2026 |
| Submission deadline | 30 Sep 2024 |
| Future notice date | Not specified |
| Award date | 9 Mar 2026 |
| Contract period | 30 Sep 2024 - 31 Mar 2026 |
| Recurrence | Not specified |

## Values

| Field | Value |
| --- | --- |
| Tender value | £131,793 |
| Lots value | Not specified |
| Awards value | £131,793 |
| Contracts value | Not specified |

## Status

| Field | Value |
| --- | --- |
| Tender status | Complete |
| Lots status | Not specified |
| Awards status | Active |
| Contracts status | Not specified |

## Buyer

| Field | Value |
| --- | --- |
| Main buyer | NHS ENGLAND |
| Locality | LONDON |
| Post town | South East London |
| Postcode | SE1 8UG |
| Country | England |
| ITL 1 | TLI London |
| ITL 2 | TLI4 Inner London - East |
| ITL 3 | TLI45 Lambeth |
| Local authority | Lambeth |
| Electoral ward | Waterloo & South Bank |
| Westminster constituency | Vauxhall and Camberwell Green |
| Delivery location | TLC North East (England), TLD North West (England), TLF East Midlands (England), TLG West Midlands (England), TLH East (England), TLJ South East (England), TLK South West (England) |

## Supplier

| Field | Value |
| --- | --- |
| Number of suppliers | 1 |
| Supplier names | CYSTIC FIBROSIS TRUST |

## CPV Codes

### Divisions

- 72 - IT services: consulting, software development, Internet and support

### Codes

- 72320000 - Database services

## Release History

- 13 Mar 2026 at 15:17 - Award - Award Notice - https://www.contractsfinder.service.gov.uk/Notice/19975c0a-f5aa-4a5a-b10f-ded8d9ed19aa

## Documents

- https://www.contractsfinder.service.gov.uk/Notice/19975c0a-f5aa-4a5a-b10f-ded8d9ed19aa
  13th March 2026 - Awarded contract notice on Contracts Finder

## Provenance

This Markdown file is an alternate public rendering of the D3 Tenders contract record. The canonical page is https://d3tenders.com/contract/?ocid=ocds-b5fd17-3cf2f276-438e-4a5b-b072-1250f1ecdd7b. The underlying structured data is available as OCDS JSON at https://d3tenders.com/contract/ocds-b5fd17-3cf2f276-438e-4a5b-b072-1250f1ecdd7b.json.