---
title: "NU2053 - Supply of a Rare Disease Recruitment Portal (RDRP)"
ocid: "ocds-b5fd17-5d76f7f5-0479-4b0b-8ba9-73019d389720"
canonical_url: "https://d3tenders.com/contract/?ocid=ocds-b5fd17-5d76f7f5-0479-4b0b-8ba9-73019d389720"
markdown_url: "https://d3tenders.com/contract/ocds-b5fd17-5d76f7f5-0479-4b0b-8ba9-73019d389720.md"
json_url: "https://d3tenders.com/contract/ocds-b5fd17-5d76f7f5-0479-4b0b-8ba9-73019d389720.json"
source: "Contracts Finder"
current_stage: "Tender"
buyer: "NEWCASTLE UNIVERSITY"
published: "2024-11-20"
---

# NU2053 - Supply of a Rare Disease Recruitment Portal (RDRP)

Buyer: NEWCASTLE UNIVERSITY  
Current stage: Tender  
OCID: ocds-b5fd17-5d76f7f5-0479-4b0b-8ba9-73019d389720

[View canonical contract page](https://d3tenders.com/contract/?ocid=ocds-b5fd17-5d76f7f5-0479-4b0b-8ba9-73019d389720)  
[Download OCDS JSON](https://d3tenders.com/contract/ocds-b5fd17-5d76f7f5-0479-4b0b-8ba9-73019d389720.json)

## Summary

Newcastle University is currently in the tender stage seeking to procure a Rare Disease Recruitment Portal (RDRP) as part of the Rare Disease Trial Acceleration Platform (RD-TAP) project, funded by LifeArc. The initiative aims to enhance the efficiency of clinical trials for rare diseases across the UK. The procurement process includes key dates, with expressions of interest due by 21st November 2024 at 2pm GMT, and the contract period spanning from 3rd March 2025 to 31st December 2025. This project falls under the "Software package and information systems" and "IT services: consulting, software development, Internet and support" industry categories, and is located in England, United Kingdom.

This tender presents an excellent opportunity for businesses specialising in software development and IT services to contribute to a significant healthcare project. Small and medium-sized enterprises (SMEs) are particularly encouraged to participate. The RDRP will facilitate efficient, patient-driven recruitment for rare disease trials, which in turn can accelerate the development and approval of new therapies. By engaging in this procurement process, businesses can expand their portfolio in the healthcare sector, establish long-term collaborations, and gain visibility through involvement in a high-impact initiative that addresses a critical medical need.

## Notice

Newcastle University are looking to procure a Rare Disease Trial Recruitment Portal (RDRP) as part of the Rare Disease Trial Acceleration Platform (RD-TAP) project, funded by LifeArc. The LifeArc Centre for Acceleration of Rare Disease Trials (www.lifearc.org/project/lifearc-translational-centres-for-rare-diseases) brings together a consortium of three universities from across the UK. Newcastle University, Queens University Belfast, and University of Birmingham are pooling their expertise in a partnership coordinated by Professor David Jones, Professor of Liver Immunology at Newcastle University. Globally, there are more than 300 million people living with rare diseases (RD), yet clinical trials for them are often challenging and can be a major limiting step in getting new treatments to patients. This PS12M centre will develop a UK '4 nations' approach to deliver trials of new treatments using 'one stop', patient friendly models with a focus on improving the efficiency of RD trials and increasing the number of opportunities for patients to take part. The research team will create a RDRP and will design and deliver trials in partnership with patients. This will speed up the delivery of clinical trials for people with RDs and enable more rapid approval of new therapies for use in the NHS. The contract reference is NU/2053. Should you be interested this project, please email Ola.Smith@newcastle.ac.uk and Jessica.Watson@newcastle.ac.uk for the full briefing document. The deadline for expressing an interest is 28th November 2024 at 2pm GMT. To do so, please email Ola.Smith@newcastle.ac.uk; Jessica.Watson@newcastle.ac.uk Please note that Newcastle University is not a contracting authority for the purposes of the UK Public Contracts Regulations 2015 and the Concession Contracts Regulations 2016, this will not apply to this Prior Information Notice or any subsequent tender activity as an outcome of this engagement. Additional information: As part of the RD-TAP project, funded by LifeArc, Newcastle University intends to purchase a Rare Disease Recruitment Portal (RDRP). Prior to advertising an Invitation to Tender (ITT) the University has issued a PIN for the purpose of engaging with the supply market to understand the different systems available to fulfil the needs of the project. The information gained from the PIN will be used to inform the specification contained in the ITT. We aim to develop the UK's first Rare Disease Recruitment Portal to facilitate equitable, patient-driven recruitment into RD trials across the four UK nations. A user-friendly RDRP, will be part of the Trial Acceleration Platform build by our LifeArc-funded Translational Rare Disease Centre (TRDC). The overall ambition is to deliver a unique, UK-wide, fully patient-centered RDRP which will address the challenges faced in all RDs of recruiting to time and target, enabling equitable patient participation in clinical research, making use of existing patient data from NHS databases, and applying FAIR data principles. Please see Appendix A (in the briefing document) for further detail about the portal. The portal will also be required to link with secure data environments within the NHS. This includes existing registry data to specific NHS digital, NHSCNI and DHSC products, housed on a trusted and secure data environment. The portal will also look to integrate with NIHR's 'Be Part of Research' initiative) https://bepartofresearch.nihr.ac.uk/), wherever possible. Interoperability of data will be key to the success of this project.

## Key Details

| Field | Value |
| --- | --- |
| Publication source | Contracts Finder |
| Latest notice | https://www.contractsfinder.service.gov.uk/Notice/a6945a3d-7ecc-4c7d-aaa4-36ed36d2be18 |
| Notice type | Tender Notice |
| Procurement type | Standard |
| Procurement category | Goods |
| Procurement method | Not Specified |
| Procurement method details | Other - |
| Tender suitability | SME |
| Awardee scale | Not specified |
| All stages | Tender |

## Dates

| Field | Value |
| --- | --- |
| Publication date | 20 Nov 2024 |
| Submission deadline | 28 Nov 2024 |
| Future notice date | Not specified |
| Award date | Not specified |
| Contract period | 3 Mar 2025 - 31 Dec 2025 |
| Recurrence | Not specified |

## Values

| Field | Value |
| --- | --- |
| Tender value | £700,000 |
| Lots value | Not specified |
| Awards value | Not specified |
| Contracts value | Not specified |

## Status

| Field | Value |
| --- | --- |
| Tender status | Active |
| Lots status | Not specified |
| Awards status | Not specified |
| Contracts status | Not specified |

## Buyer

| Field | Value |
| --- | --- |
| Main buyer | NEWCASTLE UNIVERSITY |
| Locality | NEWCASTLE UPON TYNE |
| Post town | Newcastle upon Tyne |
| Postcode | NE1 7RU |
| Country | England |
| ITL 1 | TLC North East (England) |
| ITL 2 | TLC4 Northumberland, Durham and Tyne & Wear |
| ITL 3 | TLC43 Tyneside |
| Local authority | Newcastle upon Tyne |
| Electoral ward | Monument |
| Westminster constituency | Newcastle upon Tyne Central and West |
| Delivery location | TLC North East (England), TLD North West (England), TLF East Midlands (England), TLG West Midlands (England), TLH East (England), TLJ South East (England), TLK South West (England) |

## CPV Codes

### Divisions

- 48 - Software package and information systems
- 72 - IT services: consulting, software development, Internet and support

### Codes

- 48000000 - Software package and information systems
- 72000000 - IT services: consulting, software development, Internet and support

## Release History

- 20 Nov 2024 at 15:42 - Tender - Tender Notice - https://www.contractsfinder.service.gov.uk/Notice/a6945a3d-7ecc-4c7d-aaa4-36ed36d2be18
- 31 Oct 2024 at 07:39 - Tender - Tender Notice - https://www.contractsfinder.service.gov.uk/Notice/8cb932cb-d69e-4545-b90d-1b1a775856f9

## Documents

- https://www.contractsfinder.service.gov.uk/Notice/a6945a3d-7ecc-4c7d-aaa4-36ed36d2be18
  20th November 2024 - Opportunity notice on Contracts Finder
- https://www.contractsfinder.service.gov.uk/Notice/8cb932cb-d69e-4545-b90d-1b1a775856f9
  31st October 2024 - Opportunity notice on Contracts Finder

## Notice URLs

- https://bepartofresearch.nihr.ac.uk/
- https://www.ncl.ac.uk

## Provenance

This Markdown file is an alternate public rendering of the D3 Tenders contract record. The canonical page is https://d3tenders.com/contract/?ocid=ocds-b5fd17-5d76f7f5-0479-4b0b-8ba9-73019d389720. The underlying structured data is available as OCDS JSON at https://d3tenders.com/contract/ocds-b5fd17-5d76f7f5-0479-4b0b-8ba9-73019d389720.json.