---
title: "Cystinosis Diagnosis and Management Advice Service"
ocid: "ocds-h6vhtk-02ce6d"
canonical_url: "https://d3tenders.com/contract/?ocid=ocds-h6vhtk-02ce6d"
markdown_url: "https://d3tenders.com/contract/ocds-h6vhtk-02ce6d.md"
json_url: "https://d3tenders.com/contract/ocds-h6vhtk-02ce6d.json"
source: "Find A Tender Service"
current_stage: "Award"
buyer: "THE NHS COMMISSIONING BOARD OPERATING AS NHS ENGLAND - SPECIALISED COMMISSIONING"
published: "2022-10-10"
---

# Cystinosis Diagnosis and Management Advice Service

Buyer: THE NHS COMMISSIONING BOARD OPERATING AS NHS ENGLAND - SPECIALISED COMMISSIONING  
Current stage: Award  
OCID: ocds-h6vhtk-02ce6d

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## Summary

The NHS Commissioning Board operating as NHS England - Specialised Commissioning has completed the tender process for the contract titled "Cystinosis Diagnosis and Management Advice Service." This project involved selecting service providers for adult and paediatric cystinosis services in different regions of England. The procurement method used was an open procedure, and the contract value was significant. The procurement stage was at the award level, with a cancelled status for the specific lots. The deadline for responses has passed, and specific criteria determined the awarding process.

This tender opportunity offered by NHS England can create growth opportunities for businesses in the health and social work services sector. Companies interested in providing cystinosis diagnosis and management advice services could have competed for the contracts within regional hubs. The NHS Commissioning Board operating as NHS England sought to establish partnerships with providers to offer integrated services and support excellent patient care. Businesses with the capacity and expertise to deliver multidisciplinary and geographically equitable services in the healthcare industry could have been well-suited to participate in this procurement process.

## Notice

Cystinosis is a very rare inherited lysosomal storage disease presenting in infancy (95% of cases) with severe kidney disease but subsequently involving multiple organs (eyes, thyroid, liver, diabetes, muscle deterioration). Patients often present to paediatric nephrology services although multi organ disease requires multi-speciality input. Effective drug therapy and renal transplantation has improved the life expectancy of these patients. This project comprises a provider selection process to commission adult and paediatric cystinosis services.

### Lot Information

One hub for adult and paediatric cystinosis services to cover the NHS England population in the North of England

NHS England is seeking to commission a service to deliver cystinosis diagnosis and management advice through the publication of this provider selection process. Services will be provided from 3 adult and paediatric hubs, either as a joint bid between two organisations (one covering adult services and one covering paediatric services) or as a single integrated service bid from the same organisation, covering both adult and paediatric services. Services will be selected to offer geographically equitable access to minimise patient travel times whilst also offering access to multidisciplinary resources. Services will support national networking of the highly specialised centres with the adult and paediatric centres working closely together to offer an integrated service and excellent transition of patients. The hubs will be required to work in a national network to support the development of national policies and protocols and to facilitate research. The hub allocation model will be based on a regional lot breakdown as follows: * Lot 1 - one hub for adult and paediatric cystinosis services to cover the NHS England population in the North of England * Lot 2 - one hub for adult and paediatric cystinosis services to cover the NHS England population in the Midlands and northern areas of East of England * Lot 3 - one hub for adult and paediatric cystinosis services to cover the NHS England population in the South of England and southern areas of East of England Providers wishing to be considered for the delivery of these services will need to respond to the provider selection documentation and submit responses prior to the deadline stated in this notice.

Options: The contract period is 3 years with an option to extend for a further 12 months.

One hub for adult and paediatric cystinosis services to cover the NHS England population in the Midlands and northern areas of East of England

NHS England is seeking to commission a service to deliver cystinosis diagnosis and management advice through the publication of this provider selection process. Services will be provided from 3 adult and paediatric hubs, either as a joint bid between two organisations (one covering adult services and one covering paediatric services) or as a single integrated service bid from the same organisation, covering both adult and paediatric services. Services will be selected to offer geographically equitable access to minimise patient travel times whilst also offering access to multidisciplinary resources. Services will support national networking of the highly specialised centres with the adult and paediatric centres working closely together to offer an integrated service and excellent transition of patients. The hubs will be required to work in a national network to support the development of national policies and protocols and to facilitate research. The hub allocation model will be based on a regional lot breakdown as follows: * Lot 1 - one hub for adult and paediatric cystinosis services to cover the NHS England population in the North of England * Lot 2 - one hub for adult and paediatric cystinosis services to cover the NHS England population in the Midlands and northern areas of East of England * Lot 3 - one hub for adult and paediatric cystinosis services to cover the NHS England population in the South of England and southern areas of East of England Providers wishing to be considered for the delivery of these services will need to respond to the provider selection documentation and submit responses prior to the deadline stated in this notice.

Options: The contract period is 3 years with an option to extend for a further 12 months.

Lot 3 - one hub for adult and paediatric cystinosis services to cover the NHS England population in the South of England and southern areas of East of England

NHS England is seeking to commission a service to deliver cystinosis diagnosis and management advice through the publication of this provider selection process. Services will be provided from 3 adult and paediatric hubs, either as a joint bid between two organisations (one covering adult services and one covering paediatric services) or as a single integrated service bid from the same organisation, covering both adult and paediatric services. Services will be selected to offer geographically equitable access to minimise patient travel times whilst also offering access to multidisciplinary resources. Services will support national networking of the highly specialised centres with the adult and paediatric centres working closely together to offer an integrated service and excellent transition of patients. The hubs will be required to work in a national network to support the development of national policies and protocols and to facilitate research. The hub allocation model will be based on a regional lot breakdown as follows: * Lot 1 - one hub for adult and paediatric cystinosis services to cover the NHS England population in the North of England * Lot 2 - one hub for adult and paediatric cystinosis services to cover the NHS England population in the Midlands and northern areas of East of England * Lot 3 - one hub for adult and paediatric cystinosis services to cover the NHS England population in the South of England and southern areas of East of England Providers wishing to be considered for the delivery of these services will need to respond to the provider selection documentation and submit responses prior to the deadline stated in this notice.

Options: The contract period is 3 years with an option to extend for a further 12 months.

One hub for paediatric cystinosis services to cover the NHS England population in the North of England

NHS Arden and Greater East Midlands Commissioning Support Unit (AGCSU), on behalf of NHS England (referred to as the Commissioner), is seeking to establish Cystinosis Diagnosis and Management Advice Services and are inviting interested providers to respond to this market engagement exercise. The proposed service model is described in the NHS England service specification for the provision of Cystinosis diagnosis and co-ordination of management (all ages). This sets out the detailed objectives and clinical criteria for the services. The prevalence of Cystinosis in Europe is 0.5 per 100,000. There are approximately 200-300 patients in the UK, this is based on prescription records and reports from the patients' society Cystinosis Foundation UK. NHS England is looking to gauge the potential market interest for providing these services and would like to hear from suitably qualified and experienced providers with the necessary capacity and capability (or a demonstrable ability to acquire the necessary capacity and capability) within the market including potential collaboration opportunities amongst providers. Following this, where there is a single provider expressing an interest in a Lot who would be able to meet the requirements, direct awards may be made. Where there are several providers within a lot, a further 'light-touch' one stage provider selection approach will be required. Partnerships/integrated working will be required between adults and paediatric services; in particular to support the transition pathway for patients. In line with the service specification, services will be provided from 3 adult and 3 paediatric hubs. These will be selected to offer geographically equitable access to minimise patient travel times whilst also offering access to multidisciplinary resources and to support national networking of the highly specialised centres with the adult and paediatric centres working closely together to offer an integrated service and excellent transition of patients. The hubs will be required to work in a national network to support the development of national policies and protocols and to facilitate research. The centre allocation model will be based on a regional lot breakdown as follows: * Lot 1 - one hub for adult cystinosis services to cover the NHS England population in the North of England * Lot 2 - one hub for adult cystinosis services to cover the NHS England population in the Midlands and northern areas of East of England * Lot 3 - one hub for adult cystinosis services to cover the NHS England population in South of England and southern areas of East of England * Lot 4 - one hub for paediatric cystinosis services to cover the NHS England population in the North of England * Lot 5 - one hub for paediatric cystinosis services to cover the NHS England population in the Midlands and northern areas of East of England * Lot 6 - one hub for paediatric cystinosis services to cover the NHS England population in the South of England and southern areas of East of England The market engagement includes a clear outline of the service requirements along with a questionnaire for bidders to respond to, including the key requirements to ascertain the capability of providers. The contract duration for this service will be four years, including any extension [three years plus a one-year extension]. The response deadline is 12:00 hrs midday on Tuesday 21st September 2021. To register your interest please follow this link https://uk.eu-supply.com/ctm/supplier/publictenders?B=UK and either login or register on EU Supply and search from ID number 45132. There will also be an opportunity to attend a market engagement event via Microsoft Teams at 4pm on Wednesday 11th August 2021. If you would like to participate in this event, please email josselin.canevet@nhs.net by 10am on Tuesday 10th August 2021 . All slides and questions and responses will be made available to all bidders following the event.

One hub for paediatric cystinosis services to cover the NHS England population in the Midlands and northern areas of the East of England

NHS Arden and Greater East Midlands Commissioning Support Unit (AGCSU), on behalf of NHS England (referred to as the Commissioner), is seeking to establish Cystinosis Diagnosis and Management Advice Services and are inviting interested providers to respond to this market engagement exercise. The proposed service model is described in the NHS England service specification for the provision of Cystinosis diagnosis and co-ordination of management (all ages). This sets out the detailed objectives and clinical criteria for the services. The prevalence of Cystinosis in Europe is 0.5 per 100,000. There are approximately 200-300 patients in the UK, this is based on prescription records and reports from the patients' society Cystinosis Foundation UK. NHS England is looking to gauge the potential market interest for providing these services and would like to hear from suitably qualified and experienced providers with the necessary capacity and capability (or a demonstrable ability to acquire the necessary capacity and capability) within the market including potential collaboration opportunities amongst providers. Following this, where there is a single provider expressing an interest in a Lot who would be able to meet the requirements, direct awards may be made. Where there are several providers within a lot, a further 'light-touch' one stage provider selection approach will be required. Partnerships/integrated working will be required between adults and paediatric services; in particular to support the transition pathway for patients. In line with the service specification, services will be provided from 3 adult and 3 paediatric hubs. These will be selected to offer geographically equitable access to minimise patient travel times whilst also offering access to multidisciplinary resources and to support national networking of the highly specialised centres with the adult and paediatric centres working closely together to offer an integrated service and excellent transition of patients. The hubs will be required to work in a national network to support the development of national policies and protocols and to facilitate research. The centre allocation model will be based on a regional lot breakdown as follows: * Lot 1 - one hub for adult cystinosis services to cover the NHS England population in the North of England * Lot 2 - one hub for adult cystinosis services to cover the NHS England population in the Midlands and northern areas of East of England * Lot 3 - one hub for adult cystinosis services to cover the NHS England population in South of England and southern areas of East of England * Lot 4 - one hub for paediatric cystinosis services to cover the NHS England population in the North of England * Lot 5 - one hub for paediatric cystinosis services to cover the NHS England population in the Midlands and northern areas of East of England * Lot 6 - one hub for paediatric cystinosis services to cover the NHS England population in the South of England and southern areas of East of England The market engagement includes a clear outline of the service requirements along with a questionnaire for bidders to respond to, including the key requirements to ascertain the capability of providers. The contract duration for this service will be four years, including any extension [three years plus a one-year extension]. The response deadline is 12:00 hrs midday on Tuesday 21st September 2021. To register your interest please follow this link https://uk.eu-supply.com/ctm/supplier/publictenders?B=UK and either login or register on EU Supply and search from ID number 45132. There will also be an opportunity to attend a market engagement event via Microsoft Teams at 4pm on Wednesday 11th August 2021. If you would like to participate in this event, please email josselin.canevet@nhs.net by 10am on Tuesday 10th August 2021 . All slides and questions and responses will be made available to all bidders following the event.

One hub for paediatric cystinosis services to cover the NHS England population in the South of England and southern areas of East of England

NHS Arden and Greater East Midlands Commissioning Support Unit (AGCSU), on behalf of NHS England (referred to as the Commissioner), is seeking to establish Cystinosis Diagnosis and Management Advice Services and are inviting interested providers to respond to this market engagement exercise. The proposed service model is described in the NHS England service specification for the provision of Cystinosis diagnosis and co-ordination of management (all ages). This sets out the detailed objectives and clinical criteria for the services. The prevalence of Cystinosis in Europe is 0.5 per 100,000. There are approximately 200-300 patients in the UK, this is based on prescription records and reports from the patients' society Cystinosis Foundation UK. NHS England is looking to gauge the potential market interest for providing these services and would like to hear from suitably qualified and experienced providers with the necessary capacity and capability (or a demonstrable ability to acquire the necessary capacity and capability) within the market including potential collaboration opportunities amongst providers. Following this, where there is a single provider expressing an interest in a Lot who would be able to meet the requirements, direct awards may be made. Where there are several providers within a lot, a further 'light-touch' one stage provider selection approach will be required. Partnerships/integrated working will be required between adults and paediatric services; in particular to support the transition pathway for patients. In line with the service specification, services will be provided from 3 adult and 3 paediatric hubs. These will be selected to offer geographically equitable access to minimise patient travel times whilst also offering access to multidisciplinary resources and to support national networking of the highly specialised centres with the adult and paediatric centres working closely together to offer an integrated service and excellent transition of patients. The hubs will be required to work in a national network to support the development of national policies and protocols and to facilitate research. The centre allocation model will be based on a regional lot breakdown as follows: * Lot 1 - one hub for adult cystinosis services to cover the NHS England population in the North of England * Lot 2 - one hub for adult cystinosis services to cover the NHS England population in the Midlands and northern areas of East of England * Lot 3 - one hub for adult cystinosis services to cover the NHS England population in South of England and southern areas of East of England * Lot 4 - one hub for paediatric cystinosis services to cover the NHS England population in the North of England * Lot 5 - one hub for paediatric cystinosis services to cover the NHS England population in the Midlands and northern areas of East of England * Lot 6 - one hub for paediatric cystinosis services to cover the NHS England population in the South of England and southern areas of East of England The market engagement includes a clear outline of the service requirements along with a questionnaire for bidders to respond to, including the key requirements to ascertain the capability of providers. The contract duration for this service will be four years, including any extension [three years plus a one-year extension]. The response deadline is 12:00 hrs midday on Tuesday 21st September 2021. To register your interest please follow this link https://uk.eu-supply.com/ctm/supplier/publictenders?B=UK and either login or register on EU Supply and search from ID number 45132. There will also be an opportunity to attend a market engagement event via Microsoft Teams at 4pm on Wednesday 11th August 2021. If you would like to participate in this event, please email josselin.canevet@nhs.net by 10am on Tuesday 10th August 2021 . All slides and questions and responses will be made available to all bidders following the event.

## Key Details

| Field | Value |
| --- | --- |
| Publication source | Find A Tender Service |
| Latest notice | https://www.find-tender.service.gov.uk/Notice/028455-2022 |
| Notice type | Planning Notice |
| Procurement type | Standard |
| Procurement category | Services |
| Procurement method | Open |
| Procurement method details | Open procedure |
| Tender suitability | Not specified |
| Awardee scale | Large |
| All stages | Planning, Tender, Award |

## Dates

| Field | Value |
| --- | --- |
| Publication date | 10 Oct 2022 |
| Submission deadline | 18 Mar 2022 |
| Future notice date | 29 Jul 2021 |
| Award date | 31 Aug 2022 |
| Contract period | Not specified |
| Recurrence | Not specified |

## Values

| Field | Value |
| --- | --- |
| Tender value | £2,450,000 |
| Lots value | £2,450,000 |
| Awards value | Not specified |
| Contracts value | £1,807,176 |

## Status

| Field | Value |
| --- | --- |
| Tender status | Complete |
| Lots status | Cancelled, Planned |
| Awards status | Active, Unsuccessful |
| Contracts status | Active |

## Buyer

| Field | Value |
| --- | --- |
| Main buyer | THE NHS COMMISSIONING BOARD OPERATING AS NHS ENGLAND - SPECIALISED COMMISSIONING |
| Additional buyers | NHS ARDEN AND GREATER EAST MIDLANDS COMMISSIONING SUPPORT UNIT; NHS ENGLAND - SPECIALISED COMMISSIONING |
| Locality | LONDON |
| Post town | South East London |
| Postcode | SE1 6LH |
| Country | England |
| ITL 1 | TLI London |
| ITL 2 | TLI4 Inner London - East |
| ITL 3 | TLI44 Lewisham and Southwark |
| Local authority | Southwark |
| Electoral ward | St George's |
| Westminster constituency | Bermondsey and Old Southwark |
| Delivery location | TLC North East (England), TLD North West (England), TLE Yorkshire and The Humber, TLF East Midlands (England), TLG West Midlands (England), TLH East (England), TLI London, TLJ South East (England), TLK South West (England) |

## Supplier

| Field | Value |
| --- | --- |
| Number of suppliers | 2 |
| Supplier names | GUYS'S AND ST THOMAS' NHS FOUNDATION TRUST; MANCHESTER UNIVERSITY NHS FOUNDATION TRUST |

## CPV Codes

### Divisions

- 85 - Health and social work services

### Codes

- 85000000 - Health and social work services
- 85100000 - Health services

## Release History

- 10 Oct 2022 at 14:52 - Award - Award Notice - https://www.find-tender.service.gov.uk/Notice/028455-2022
- 28 Jan 2022 at 15:09 - Tender - Tender Notice - https://www.find-tender.service.gov.uk/Notice/002564-2022
- 30 Jul 2021 at 07:53 - Planning - Planning Notice - https://www.find-tender.service.gov.uk/Notice/018175-2021

## Notice URLs

- http://www.england.nhs.uk
- https://uk.eu-supply.com/app/rfq/rwlentrance_s.asp?PID=39982&B=AGCSU
- https://uk.eu-supply.com/ctm/Company/CompanyInformation/Index/68205
- https://uk.eu-supply.com/ctm/supplier/publictenders?B=UK

## Provenance

This Markdown file is an alternate public rendering of the D3 Tenders contract record. The canonical page is https://d3tenders.com/contract/?ocid=ocds-h6vhtk-02ce6d. The underlying structured data is available as OCDS JSON at https://d3tenders.com/contract/ocds-h6vhtk-02ce6d.json.