---
title: "UKRI-2310 Hub Function for the UK Rare Disease Research Platform"
ocid: "ocds-h6vhtk-0376bf"
canonical_url: "https://d3tenders.com/contract/?ocid=ocds-h6vhtk-0376bf"
markdown_url: "https://d3tenders.com/contract/ocds-h6vhtk-0376bf.md"
json_url: "https://d3tenders.com/contract/ocds-h6vhtk-0376bf.json"
source: "Find A Tender Service"
current_stage: "Award"
buyer: "UK RESEARCH & INNOVATION"
published: "2023-05-24"
---

# UKRI-2310 Hub Function for the UK Rare Disease Research Platform

Buyer: UK RESEARCH & INNOVATION  
Current stage: Award  
OCID: ocds-h6vhtk-0376bf

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## Summary

The UK Research & Innovation is seeking a service provider to commission a Hub function for the UK Rare Disease Research Platform. The procurement exercise aims to establish and maintain a platform that will enhance collaboration between academic, clinical, and industry research for rare diseases. The UK-RDRP will consist of multiple challenge-led thematic nodes led by UK research organisations, with a central integrated platform Hub. The procurement method for this tender is an open procedure, with the main procurement category being services. The total Funder cost of the Platform is £12 million over five years, with the Hub function budget expected to be £100,000 to £150,000 per year.

This tender opportunity for the UK Rare Disease Research Platform Hub function presents significant prospects for businesses in project management consultancy services. Small or medium enterprises (SMEs) with expertise in coordinating and managing research initiatives could find this tender suitable for their business growth. The procurement stage for this opportunity is currently cancelled, and the main procurement category is services. The platform aims to accelerate the understanding, diagnosis, and therapy of rare diseases through collaboration with various stakeholders. Key dates for funding nodes start from August 2022, with decisions in March 2023, providing a timeline for businesses to engage in the project's development and implementation.

## Notice

The UK Rare Disease Research Platform (UK-RDRP) is being established by MRC and NIHR to connect and enhance the UK's strengths in rare disease research. Rare diseases are defined as diseases with a prevalence of less than one in 2000 individuals, and include disease of genetic and non-genetic origins. The aim of the Platform is to underpin greater collaboration between academic, clinical and industry research with essential patients, research charities and other stakeholders to accelerate the understanding, diagnosis and therapy of rare diseases. The Platform will support networking and activities that enable research and will comprise a number of challenge-led thematic nodes (each led by UK research organisations, e.g. universities), with a single, integrated platform Hub.

### Lot Information

Lot 1

This procurement exercise will commission a Hub function for the UK-RDRP, with following objectives: *Coordinate and bring cohesion to the Platform *Establish and maintain a website, mailing lists and social media presence for the Platform *Provide a point of contact for external stakeholders *Administer the Platform. The Hub will support a set of around 10 -12 nodes (each of which will do networking and enabling science within a specified subset of rare disease research (a 'domain')) as well as providing a broad service to all UK rare disease research interests. The Nodes, Hub and all stakeholders and related interests will collectively form the Platform (the UK-RDRP). The nodes will be funded via an open call, launching in August 2022 with decisions in March 2023 and nodes starting work in May-June 2023. The Platform is co-funded by MRC and NIHR, following MRC processes unless stated otherwise. The Platform is one of the activities that will support the national Rare Disease Framework, in particular the 'pioneering research' theme The Platform will be managed by a Platform Executive Board (including the funders, node directors, stakeholders and independent members).

## Key Details

| Field | Value |
| --- | --- |
| Publication source | Find A Tender Service |
| Latest notice | https://www.find-tender.service.gov.uk/Notice/014723-2023 |
| Notice type | Planning Notice |
| Procurement type | Standard |
| Procurement category | Services |
| Procurement method | Open |
| Procurement method details | Open procedure |
| Tender suitability | Not specified |
| Awardee scale | Large |
| All stages | Planning, Award |

## Dates

| Field | Value |
| --- | --- |
| Publication date | 24 May 2023 |
| Submission deadline | Not specified |
| Future notice date | 6 Dec 2022 |
| Award date | 2 May 2023 |
| Contract period | Not specified |
| Recurrence | Not specified |

## Values

| Field | Value |
| --- | --- |
| Tender value | £750,000 |
| Lots value | Not specified |
| Awards value | Not specified |
| Contracts value | £749,376 |

## Status

| Field | Value |
| --- | --- |
| Tender status | Complete |
| Lots status | Cancelled |
| Awards status | Active |
| Contracts status | Active |

## Buyer

| Field | Value |
| --- | --- |
| Main buyer | UK RESEARCH & INNOVATION |
| Locality | SWINDON |
| Post town | Swindon |
| Postcode | SN2 1FL |
| Country | England |
| ITL 1 | TLK South West (England) |
| ITL 2 | TLK7 Gloucestershire and Wiltshire |
| ITL 3 | TLK71 Swindon |
| Local authority | Swindon |
| Electoral ward | Rodbourne Cheney |
| Westminster constituency | Swindon North |
| Delivery location | Not specified |

## Supplier

| Field | Value |
| --- | --- |
| Number of suppliers | 1 |
| Supplier names | THE UNIVERSITY OF NEWCASTLE UPON TYNE |

## CPV Codes

### Divisions

- 72 - IT services: consulting, software development, Internet and support

### Codes

- 72224000 - Project management consultancy services

## Release History

- 24 May 2023 at 09:05 - Award - Award Notice - https://www.find-tender.service.gov.uk/Notice/014723-2023
- 18 Oct 2022 at 15:05 - Planning - Planning Notice - https://www.find-tender.service.gov.uk/Notice/029345-2022

## Notice URLs

- https://ukri.delta-esourcing.com/delta/viewNotice.html?noticeId=783401706
- https://www.ukri.org/
- https://www.ukri.org/,NorthStarAvenue

## Provenance

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