---
title: "Provision of Cystic Fibrosis Registry"
ocid: "ocds-h6vhtk-066a1e"
canonical_url: "https://d3tenders.com/contract/?ocid=ocds-h6vhtk-066a1e"
markdown_url: "https://d3tenders.com/contract/ocds-h6vhtk-066a1e.md"
json_url: "https://d3tenders.com/contract/ocds-h6vhtk-066a1e.json"
source: "Find A Tender Service"
current_stage: "Award"
buyer: "NHS ENGLAND"
published: "2026-03-13"
---

# Provision of Cystic Fibrosis Registry

Buyer: NHS ENGLAND  
Current stage: Award  
OCID: ocds-h6vhtk-066a1e

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## Summary

NHS England, based in London, has completed the procurement process for the provision of a Cystic Fibrosis Registry, awarded on 9th March 2026. The procurement falls under the services category, specifically database services (CPV code: 72320000), and was executed through a limited procurement method due to protection of exclusive rights. The contract, valued at £131,793.5, has been active since the award date and involves the collection of data for Authority Specialised Commissioning Hub and ad hoc reports. This initiative was carried out without prior publication due to the specialised nature of the services required, centralised in the Yorkshire and The Humber (region: UKE). NHS England coordinated the tender process, which adheres to the legal basis of CELEX Directive 32014L0024.

With NHS England as the buyer, the opportunity was tailored towards entities with expertise in database services, presenting growth possibilities for businesses specialising in healthcare data management and compliance with data protection legislation. The contract was awarded to the Cystic Fibrosis Trust, a specialised organisation well-versed in managing registry services, indicating the preference for a provider with a deep understanding of cystic fibrosis and associated data needs. Although the bidding statistics noted only one electronic bid, potential future opportunities could invite more competition from SMEs and other entities keen to contribute to healthcare service optimisation and ethical data handling. The award reflects an ongoing collaboration required for audit and service evaluation purposes, preparing a solid foundation for further research collaborations subject to approval by the Registry Research Committee. Businesses focusing on healthcare technology and innovative data solutions may find future tenders in this field highly beneficial.

## Notice

To provide to Authority annual year of care banding information derived from the Registry, which will include a breakdown by Authority Specialised Commissioning Hub.
To provide at the request of Authority on an ad hoc basis such aggregated data as is available in the Registry for the purposes of audit and service evaluation, subject to the following:
*
Compliance with Research Ethics approvals, the Data Protection Legislation and the terms of any patient consent relied on.
*
That Authority will make every effort to provide the maximum possible notice of such requests.
*
That, on receipt of an ad hoc request, the Supplier will provide an estimated delivery date. The Supplier will aim to complete requests within 10 working days. This period may have to be extended subject to the complexity of the request, and concomitant work streams.
*
That the Supplier will make all reasonable efforts to comply with specific deadlines set by Authority
*
Any data requests for Research purposes are subject to approval by the Registry Research Committee (a sub-group of the Registry Steering Committee).

### Lot Information

Lot 1

To provide to Authority annual year of care banding information derived from the Registry, which will include a breakdown by Authority Specialised Commissioning Hub.
To provide at the request of Authority on an ad hoc basis such aggregated data as is available in the Registry for the purposes of audit and service evaluation, subject to the following:
*
Compliance with Research Ethics approvals, the Data Protection Legislation and the terms of any patient consent relied on.
*
That Authority will make every effort to provide the maximum possible notice of such requests.
*
That, on receipt of an ad hoc request, the Supplier will provide an estimated delivery date. The Supplier will aim to complete requests within 10 working days. This period may have to be extended subject to the complexity of the request, and concomitant work streams.
*
That the Supplier will make all reasonable efforts to comply with specific deadlines set by Authority
*
Any data requests for Research purposes are subject to approval by the Registry Research Committee (a sub-group of the Registry Steering Committee).

### Procurement Information

Reg 32(2)(b)(ii) and (iii) PCR 2015 Repeating similar.

## Key Details

| Field | Value |
| --- | --- |
| Publication source | Find A Tender Service |
| Latest notice | https://www.find-tender.service.gov.uk/Notice/023100-2026 |
| Notice type | Award Notice |
| Procurement type | Standard |
| Procurement category | Services |
| Procurement method | Limited |
| Procurement method details | Award procedure without prior publication of a call for competition |
| Tender suitability | Not specified |
| Awardee scale | SME |
| All stages | Award |

## Dates

| Field | Value |
| --- | --- |
| Publication date | 13 Mar 2026 |
| Submission deadline | Not specified |
| Future notice date | Not specified |
| Award date | 9 Mar 2026 |
| Contract period | Not specified |
| Recurrence | Not specified |

## Values

| Field | Value |
| --- | --- |
| Tender value | Not specified |
| Lots value | Not specified |
| Awards value | Not specified |
| Contracts value | £131,793 |

## Status

| Field | Value |
| --- | --- |
| Tender status | Complete |
| Lots status | Cancelled |
| Awards status | Active |
| Contracts status | Active |

## Buyer

| Field | Value |
| --- | --- |
| Main buyer | NHS ENGLAND |
| Locality | LONDON |
| Post town | South East London |
| Postcode | SE1 8UG |
| Country | England |
| ITL 1 | TLI London |
| ITL 2 | TLI4 Inner London - East |
| ITL 3 | TLI45 Lambeth |
| Local authority | Lambeth |
| Electoral ward | Waterloo & South Bank |
| Westminster constituency | Vauxhall and Camberwell Green |
| Delivery location | TLE Yorkshire and The Humber |

## Supplier

| Field | Value |
| --- | --- |
| Number of suppliers | 1 |
| Supplier names | CYSTIC FIBROSIS TRUST |

## CPV Codes

### Divisions

- 72 - IT services: consulting, software development, Internet and support

### Codes

- 72320000 - Database services

## Release History

- 13 Mar 2026 at 15:07 - Award - Award Notice - https://www.find-tender.service.gov.uk/Notice/023100-2026

## Notice URLs

- http://cysticfibrosis.org.uk
- https://www.england.nhs.uk/

## Provenance

This Markdown file is an alternate public rendering of the D3 Tenders contract record. The canonical page is https://d3tenders.com/contract/?ocid=ocds-h6vhtk-066a1e. The underlying structured data is available as OCDS JSON at https://d3tenders.com/contract/ocds-h6vhtk-066a1e.json.