Notice Information
Notice Title
Public Deliberation Research
Notice Description
Genomics England's Newborns Genome Programme is co-designing and running an NHS-embedded research study to explore the benefits, challenges, and practicalities of sequencing and analysing the genomes of newborns through using whole genome sequencing (WGS). The evidence gathered from the study will be evaluated rigorously to inform decisions about whether to roll-out this technology and develop the world's first national newborn screening programme that uses whole genome sequencing. One of the Programme's objectives is to understand how newborns' genomic and health data could be used for discovery research - for example, to enable the development of new diagnostics and treatments. With parents' consent, babies' genomes could be de-identified and added, alongside their health data, to Genomics England's National Genomic Research Library. This would enable carefully vetted academic, clinical, and life science industry researchers to develop novel diagnostics and treatments as well as understand how current therapies can be improved or repurposed, offering better outcomes to NHS patients. We are aware of particular sensitivities in society generally around the long-term storage and use of genomic and related health data in the context of research. To address these concerns, to date we have carried out small-scale in-house research with mothers or expectant mothers, where we have explored their feelings around how researchers could access and use newborns' genomes for research. However, this procurement aims to broaden these discussions, and unpack people's views on various options and approaches for the Programme's discovery research strategy. This procurement will support these aims, enabling in-depth exploration of attitudes and views on different types of data that could be drawn on for the Programme's research strategy, the acceptable and appropriate scope of research on these data, and specific mechanisms for creating a trustworthy system for doing so. To find out more about this opportunity and access the tender documents please register at https://genomicsengland.bravosolution.co.uk/genomicsengland/web/login.html and search for project_821
Notice Details
Publication & Lifecycle
- Open Contracting ID
- ocds-b5fd17-8d9aa745-b78f-4ab6-b65c-f6d0e66be592
- Publication Source
- Contracts Finder
- Latest Notice
- https://www.contractsfinder.service.gov.uk/Notice/947e153a-5e1e-4e69-8f06-e05280384c38
- Current Stage
- Tender
- All Stages
- Tender
Procurement Classification
- Notice Type
- Tender Notice
- Procurement Type
- Standard
- Procurement Category
- Services
- Procurement Method
- Open
- Procurement Method Details
- Open procedure (below threshold)
- Tender Suitability
- SME, VCSE
- Awardee Scale
- Not specified
Common Procurement Vocabulary (CPV)
- CPV Divisions
73 - Research and development services and related consultancy services
-
- CPV Codes
73000000 - Research and development services and related consultancy services
Notice Value(s)
- Tender Value
- £100,000 £100K-£500K
- Lots Value
- Not specified
- Awards Value
- Not specified
- Contracts Value
- Not specified
Notice Dates
- Publication Date
- 7 Nov 20223 years ago
- Submission Deadline
- 23 Nov 2022Expired
- Future Notice Date
- Not specified
- Award Date
- Not specified
- Contract Period
- 3 Jan 2023 - 28 Mar 2023 1-6 months
- Recurrence
- Not specified
Notice Status
- Tender Status
- Active
- Lots Status
- Not Specified
- Awards Status
- Not Specified
- Contracts Status
- Not Specified
Buyer & Supplier
Contracting Authority (Buyer)
- Main Buyer
- GENOMICS ENGLAND
- Contact Name
- Available with D3 Tenders Premium →
- Contact Email
- Available with D3 Tenders Premium →
- Contact Phone
- Available with D3 Tenders Premium →
Buyer Location
- Locality
- LONDON
- Postcode
- EC1M 6BU
- Post Town
- Central London
- Country
- England
-
- Major Region (ITL 1)
- TLI London
- Basic Region (ITL 2)
- TLI4 Inner London - East
- Small Region (ITL 3)
- TLI43 Haringey and Islington
- Delivery Location
- Not specified
-
- Local Authority
- Islington
- Electoral Ward
- Clerkenwell
- Westminster Constituency
- Islington South and Finsbury
Further Information
Notice Documents
-
https://www.contractsfinder.service.gov.uk/Notice/947e153a-5e1e-4e69-8f06-e05280384c38
7th November 2022 - Opportunity notice on Contracts Finder
Open Contracting Data Standard (OCDS)
View full OCDS Record for this contracting process
The Open Contracting Data Standard (OCDS) is a framework designed to increase transparency and access to public procurement data in the public sector. It is widely used by governments and organisations worldwide to report on procurement processes and contracts.
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