Award

Provision of Cystic Fibrosis Registry

NHS ENGLAND

This public procurement record has 1 release in its history.

Award

13 Mar 2026 at 15:07

Summary of the contracting process

NHS England, based in London, has completed the procurement process for the provision of a Cystic Fibrosis Registry, awarded on 9th March 2026. The procurement falls under the services category, specifically database services (CPV code: 72320000), and was executed through a limited procurement method due to protection of exclusive rights. The contract, valued at £131,793.5, has been active since the award date and involves the collection of data for Authority Specialised Commissioning Hub and ad hoc reports. This initiative was carried out without prior publication due to the specialised nature of the services required, centralised in the Yorkshire and The Humber (region: UKE). NHS England coordinated the tender process, which adheres to the legal basis of CELEX Directive 32014L0024.

With NHS England as the buyer, the opportunity was tailored towards entities with expertise in database services, presenting growth possibilities for businesses specialising in healthcare data management and compliance with data protection legislation. The contract was awarded to the Cystic Fibrosis Trust, a specialised organisation well-versed in managing registry services, indicating the preference for a provider with a deep understanding of cystic fibrosis and associated data needs. Although the bidding statistics noted only one electronic bid, potential future opportunities could invite more competition from SMEs and other entities keen to contribute to healthcare service optimisation and ethical data handling. The award reflects an ongoing collaboration required for audit and service evaluation purposes, preparing a solid foundation for further research collaborations subject to approval by the Registry Research Committee. Businesses focusing on healthcare technology and innovative data solutions may find future tenders in this field highly beneficial.

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Notice Title

Provision of Cystic Fibrosis Registry

Notice Description

To provide to Authority annual year of care banding information derived from the Registry, which will include a breakdown by Authority Specialised Commissioning Hub.<br/>To provide at the request of Authority on an ad hoc basis such aggregated data as is available in the Registry for the purposes of audit and service evaluation, subject to the following:<br/>*<br/>Compliance with Research Ethics approvals, the Data Protection Legislation and the terms of any patient consent relied on.<br/>*<br/>That Authority will make every effort to provide the maximum possible notice of such requests.<br/>*<br/>That, on receipt of an ad hoc request, the Supplier will provide an estimated delivery date. The Supplier will aim to complete requests within 10 working days. This period may have to be extended subject to the complexity of the request, and concomitant work streams.<br/>*<br/>That the Supplier will make all reasonable efforts to comply with specific deadlines set by Authority<br/>*<br/>Any data requests for Research purposes are subject to approval by the Registry Research Committee (a sub-group of the Registry Steering Committee).

Lot Information

Lot 1

To provide to Authority annual year of care banding information derived from the Registry, which will include a breakdown by Authority Specialised Commissioning Hub.
To provide at the request of Authority on an ad hoc basis such aggregated data as is available in the Registry for the purposes of audit and service evaluation, subject to the following:
*
Compliance with Research Ethics approvals, the Data Protection Legislation and the terms of any patient consent relied on.
*
That Authority will make every effort to provide the maximum possible notice of such requests.
*
That, on receipt of an ad hoc request, the Supplier will provide an estimated delivery date. The Supplier will aim to complete requests within 10 working days. This period may have to be extended subject to the complexity of the request, and concomitant work streams.
*
That the Supplier will make all reasonable efforts to comply with specific deadlines set by Authority
*
Any data requests for Research purposes are subject to approval by the Registry Research Committee (a sub-group of the Registry Steering Committee).

Procurement Information

Reg 32(2)(b)(ii) and (iii) PCR 2015 Repeating similar.

Publication & Lifecycle

Open Contracting ID
ocds-h6vhtk-066a1e
Publication Source
Find A Tender Service
Latest Notice
https://www.find-tender.service.gov.uk/Notice/023100-2026
Current Stage
Award
All Stages
Award

Procurement Classification

Notice Type
Award Notice
Procurement Type
Standard
Procurement Category
Services
Procurement Method
Limited
Procurement Method Details
Award procedure without prior publication of a call for competition
Tender Suitability
Not specified
Awardee Scale
SME

Common Procurement Vocabulary (CPV)

CPV Divisions

72 - IT services: consulting, software development, Internet and support


CPV Codes

72320000 - Database services

Notice Value(s)

Tender Value
Not specified
Lots Value
Not specified
Awards Value
Not specified
Contracts Value
£131,793 £100K-£500K

Notice Dates

Publication Date
13 Mar 2026Yesterday
Submission Deadline
Not specified
Future Notice Date
Not specified
Award Date
9 Mar 20266 days ago
Contract Period
Not specified - Not specified
Recurrence
Not specified

Notice Status

Tender Status
Complete
Lots Status
Cancelled
Awards Status
Active
Contracts Status
Active

Contracting Authority (Buyer)

Main Buyer
NHS ENGLAND
Contact Name
Available with D3 Tenders Premium →
Contact Email
Available with D3 Tenders Premium →
Contact Phone
Available with D3 Tenders Premium →

Buyer Location

Locality
LONDON
Postcode
SE1 8UG
Post Town
South East London
Country
England

Major Region (ITL 1)
TLI London
Basic Region (ITL 2)
TLI4 Inner London - East
Small Region (ITL 3)
TLI45 Lambeth
Delivery Location
TLE Yorkshire and The Humber

Local Authority
Lambeth
Electoral Ward
Waterloo & South Bank
Westminster Constituency
Vauxhall and Camberwell Green

Supplier Information

Number of Suppliers
1
Supplier Name

CYSTIC FIBROSIS TRUST

Open Contracting Data Standard (OCDS)

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The Open Contracting Data Standard (OCDS) is a framework designed to increase transparency and access to public procurement data in the public sector. It is widely used by governments and organisations worldwide to report on procurement processes and contracts.

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